Welcome to the rest of your life

Welcome to the rest of your life

Dear friends, here is a note to tell you about a strange new part of my life on earth.

Late last year, several people I am close to emotionally and/or adjacent to physically received cancer diagnoses.  That was hard. And what made it harder was my mother’s injuries, which caused her to enter a graduated care facility. My siblings began the process of selling the house I thought of as home. I felt like I had lost my main support system all at once, and I spent a week watching old movies like The Sound of Music (in my mind the uber story of family and acceptance) and eating fried things. But I still thought of these horrible things as happening to other people.

T1497487_10100755868835032_2635721995578624793_nhis week, however, I was diagnosed with breast cancer, which in the screenplay of my life feels like bad writing. Like some hack writer somewhere has just given up and is recycling the same device over and over again. On Monday, March 14, I went for a routine mammogram—overdue, as it turns out, but maybe just well timed. The tech saw the mass immediately and was able to flag the film and get it to a doctor. By 2 pm I had received a call from a lovely person whose actual title is breast navigator–not the dream job it sounds like, gentlemen friends! By Wednesday I had an ultrasound, which revealed “spiculated edges,”which aren’t the good kind of edges.  By Thursday I had a biopsy surrounded by a posse of dear friends who entertained the waiting room arguing about which Golden Girls they were. By Friday I had a diagnosis, with just the basics—2.5 cm invasive ductile carcinoma (that’s the most common manifestation of breast cancer). 2.5 cm means stage two. So the mass has been hanging around a while, waiting for the right moment to ope its ponderous and marble jaws.

I started the process of telling my family, and spent the weekend pacing, watching Star Trek reruns, huddled with my dogs, with a weird unreal scream in my head.  What anyone knows who has lived through something like this is the paradox of not wanting to be alone and not being able to stand talking, especially because of the litany of things I didn’t know and still don’t know. I know it’s going to be really, really expensive. But I don’t know a billion details about this cancer that I will learn soon. I don’t know what’s going to happen next. I don’t know the timeline. I don’t know what decisions I’ll need to make about another billion things, like my job, or my dogs, or what parts they let me lop off. I haven’t spoken to a single doctor, just the awesome breast navigator who is apparently paid so that doctors can shrug and look at each other funny and then hand you her card. I am so grateful for the love behind the questions, but I can’t answer them. So, inspired by some other friends’ examples, I made this blog to keep you up to date.

Today I learned about cancer grade, which has to do with number of tubule cells in the mass (many is good) and rate of mitosis (slow is good). I have a grade 2 cancer at the posterior wall of my breast (it’s 3 o’clock or 9 o’clock—not so good with the clocks). Tomorrow, I hope to learn how receptive my cancer is to hormones like estrogen and progesterone (receptive is good), and I get to meet with a surgeon. From a weekend poring over support blogs, academic journals, and health sites, I’m learning what I only distantly understood before: once it’s part of your life, it knows the way to your house, like a creepy colleague, and could pop back up when you think it’s gone, like one of those awful songs by the Captain and Tennille–I’m talking about you, Muskrat Susie! So welcome, cancer, to the rest of my life. And to those of you who live with it, I’m sorry I just didn’t get that before. Empathy takes forever to keep learning.

But I’ve heard this, too: If you have to have cancer, this is a good one to have. Lots of people get it, and they have lots of ways to go after it. It’s going to be okay.  And apparently I have some good friends. I’m single, and my family lives far away, so I’m going to need help. Lots of it. I’ve already been humbled by the offers of help, and I know I will keep being humbled. So thanks, in advance, for helping.

34 thoughts on “Welcome to the rest of your life

  1. Well that is some crappy news. You will be in our prayers. Please call me if any of your appointments bring you our way. I will gladly discuss the Golden Girls with you to pass the time.

    (Also: I can’t believe I never knew Breast Navigator was a job before today. I hope your Breast Navigator is the best Breast Navigator ever to navigate a breast.)

    1. yeah, it turns out breast navigating isn’t unique to Sylva. I wonder if there’s an app for it. Thanks for the prayers; my best to your family and you. No doubt I’ll be over that way a lot.

  2. Mary, Mary , Mary!!! So sorry to hear this news but I know that it is curable and that you will be able to recover as soon as you have the diagnostic procedures completed. You must talk with Clare.She chose a radical procedure from which she has fully recovered and she is fine. She has had no chemotherapy and no radiation…just a double mastectomy and reconstruction done in one surgery. The recovery was arduous and painful but the results of the procedure are very good indeed! I will be glad to offer any assistance that you may need in terms of transportation, hospital care, etc…I am a fairly good nurse and a pretty good listener, so do not hesitate to tell me if I can be of assistance. I hate this for you. Fitzie

  3. Mary, you have our support and our help, whatever that turns out to be. Stage 2, prognosis good, and you will be fine, but the journey is not one to take lightly. What a crappy way to being spring. Keep us updated. We’ll stay in touch.

  4. Mary, please know I am here to help in whatever way I can. You are in my thoughts and prayers.

  5. Dr. Adams,

    This brought me to tears. I’m so so sorry. I’ll be sending you some wine very soon.

    Your student,
    Sofia

  6. Oh my! Crazy how the focus of your life can change virtually over night. I will be following this blog to see how you’re doing and will be sending healing vibes your way. Come to Asheville anytime you would like to be plied with drinks and food. xoxo, Tina

  7. Lovin’ you, praying for your boobs, and hoping you’ll make liberal with the updates, because we’ll be thinking about you!

  8. Wow, Mary! I am so sorry to hear this. But your attitude is fantastic…your cancer does not know the ass-kicking coming it’s way. Please let me know if and when you need anything!
    Dela

  9. Mary,
    Eloquent as always.
    I need to visit your recent posts and take the time to read the poetry you’ve posted.
    You’ve chosen a good way to to communicate with family and friends, which with luck will avoid traumatizing Betty.
    You are in my thoughts.

  10. Mary,
    Eloquent as always.
    I need to visit your recent posts and take the time to read the poetry you’ve posted.
    You’ve chosen a good way to to communicate with family and friends, which with luck will avoid traumatizing Betty.
    You are in my thoughts.

  11. I was diagnosed in 2014 of lobular carcinoma. I am a member of a great group of breast cancer survivors, the pink ladies in the Merritt Island, Cape Canaveral area. Feel free to call me, you can find my contact number on my website http://www.abonitascarf.com

    Sincerely,
    Bonita

  12. Anything your posse of goons don’t cover for you, I’m available. Such a shitty disease!

  13. Mary,
    I hate what is happening to you, but I love the way you write about it with such humor and candor.
    Love,
    Pam

  14. HI, Mary. My name is Jane, and I’m living without cancer.

    I had decided for, for some obscure reason, to stop having mammograms and Pap smears. I’m older, I said. Let Nature have its way. Within a year or so, I happened to feel a lump in my left breast. Mind you, I was not feeling myself up. The self exams had been scuttled with the other “enhanced methods of questioning ” reserved just for women’s bodies.

    I had an ultrasound that revealed a spiculated tumor. The radiologist showed me the images, noting that the spicules were not good news. I was thinking how very beautiful and delicate this 1.8 cm death threat was.

    So, I have been through the relatively standard attacks on the little sucker. I can share my experiences, as can many others.

    I’m shutting up now; this blog is yours.

  15. Mary, I heard about your cancer after coming back from a visit on Saturday with Veronica and family including the amazing Clare. I know you have a lot of friends who understand more about breast cancer than I do, but if you want someone to talk with who has had two different cancers (prostate and bladder) and has learned to live with two bags on my belly for excretion, call on me. I know about needing friends and also about not knowing how to talk. However, I will say that this last cancer finally made me face the inevitable and when I did I entered a vivid awareness of living and an accompanying joy. I am not sure you would want to talk with me, but I can share experiences and poems. I’ll hold you up in my meditation and prayers.

  16. Mary, thank you for opening up and sharing this. Please know you are loved and you have a village of friends who will be proud to help you through this. Your comment about not wanting to be alone and yet not wanting to socialize strikes a direct hit – I fully empathize. Although I’m a little distanced now from the medical maze I would be very glad to help you navigate the system. I know it will be frustrating at times but the technology available is awesome and the outlook is amazingly positive. Namaste. Ron

  17. I’ve been reading about your journey ever since you started this blog, but am just now commenting. I hate to hear of your diagnosis, but wish you luck with your recovery. I am, and many others are, behind you 100%, and I know you’ll do all you can to kick this thing’s butt. Best wishes, and you’re in my thoughts.

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